Research Data

11million

EU citizens

24

studies

7

countries

100%

of life-course stages

what data is being used in longitools?

LongITools has access to a very large resource of life-course data including prospective birth cohort studies and longitudinal studies in adults, register-based cohorts, randomised controlled trials, patient databases and maternity and hospital biobanks. These LongITools data sets include data variables on over 11 million European and UK citizens, from 24 different studies. The data variables are wide ranging and include, for example, height, weight, blood composition, employment, lifestyle factors, cholesterol and many more. Where possible, researchers have harmonised the variables in their data sets to an agreed LongITools definition (harmonised model or common data model).

Our team will use the data to try and identify the underlying molecular mechanisms that lead to cardiometabolic diseases, and factors that can modify or meditate these mechanisms to help prevent disease.

Below is a summary of the cohort studies, being used in the research, mapped across the life-course. More details on all of the data sets being used in the project can be found at the bottom of this page and in the project’s profile paper: Dynamic longitudinal exposome trajectories in cardiovascular and metabolic noncommunicable disease.

24 studies in longitools

Cohort Name

Country

Link to Cohort Website

Cohort Name

Arctic Biobank

Country

Finland

Link to Cohort Website

Website

Cohort Name

Avon Longitudinal Study of Parents and Children Generation 0, 1 and 2 (ALSPAC)

Country

UK

Link to Cohort Website

Website

Cohort Name

Cohorte des Consultants des Centres d'Examens de Santé (CONSTANCES)

Country

France

Link to Cohort Website

Website

Cohort Name

Dutch Famine Birth Cohort (DFBC)

Country

Netherlands

Link to Cohort Website

Website

Cohort Name

EDEN

Country

France

Link to Cohort Website

Website

Cohort Name

French Longitudinal Study of Children (ELFE)

Country

France

Link to Cohort Website

Website

Cohort Name

ELIPA

Country

Finland

Link to Cohort Website

N/A

Cohort Name

Fibrefects (FEF)

Country

Finland

Link to Cohort Website

N/A

Cohort Name

Finnish Gestational Diabetes Study (FinnGeDi)

Country

Finland

Link to Cohort Website

N/A

Cohort Name

Finnish Maternity Cohort (FMC)

Country

Finland

Link to Cohort Website

Website

Cohort Name

Finnish Register Sample  (FR)

Country

Finland

Link to Cohort Website

N/A

Cohort Name

Generation R

Country

Netherlands

Link to Cohort Website

Website

Cohort Name

Northern Finland Birth Cohort 1966 (NFBC1966) and 1986 (NFBC1986) and Parents

Country

Finland

Link to Cohort Website

Website

Cohort Name

NOMA

Country

Norway

Link to Cohort Website

N/A

Cohort Name

Nordic Children and Adults Born Preterm (NORDCAP)

Country

Denmark, Finland, Norway and Sweden

Link to Cohort Website

Website

Cohort Name

Born in Oulu in 1935 (OULU 1935) and in 1945 (OULU 1945)

Country

Finland

Link to Cohort Website

Website

Cohort Name

Physical Activity and Nutrition in Children (PANIC)

Country

Finland

Link to Cohort Website

Website

Cohort Name

Rotterdam Study (RS)

Country

Netherlands

Link to Cohort Website

Website

Cohort Name

SYSDIMET

Country

Finland

Link to Cohort Website

N/A

Cohort Name

UK Biobank 

Country

UK

Link to Cohort Website

Website


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